All in a Name

A name reflects a person's essence. It touches us to our very core. Here's an amazing story about the power of a name:

Meet: Sylina.


Sylina is the newest member of our family.

All of our neighbors know her.

                                                                                                                 
                                                                                                                 She is extremely dedicated.

Yossi gets very excited when he sees Sylina. She is genuine, hard working, and full of love. We are so blessed to have her. She makes our lives so much easier and she has all of our trust. Sylina is an amazing companion for Yossi because she can relate so well. She herself has a daughter with multiple medical and physical conditions.

Since mid December her daughter has been hospitalized for the most part. things took a turn for the worse around April: 3 year old symia was on life support and her condition remaind unchanged for a while.

One night Sylina was standing at her daughter's bedside. in desperation she called out to her by her first name (she never uses her first name) "alexsandria please please open your eyes" and her daughter woke up!

Now its 2 weeks later and  Alexsandria is completely well and she is even back in school. You can bet that from now on we are calling her only by her first name!

out of the woods?

Things have been calm on the home front
Quiet for a while.
but we are not out of the woods yet
not by far

we are deep in  a dense forest
of seizure medications
but we aren't lost among the possibilities
we are back on the beaten path

lower one medicine,
upset the balance
raise another
to make up the difference

0 seizures to 10
and back to none again
from sleepy to alert
from silent to talkative

for now its as good as can be
we're moving forward slowly
i dont see the clearing in the distance
but i know we are back on track

these days are a peek into the future,
i can visualize what the end will look like
as we move slowly down the path
through the woods

Mother's Day

A friend of mine shared an article on facebook entitled  'A letter to the motherless on mother's day', which of course got me thinking about both of my moms.  Now that i'm a mom myself i miss them even more. i wish they were here to share my journey of motherhood with me.

One of mom's favorite sayings was "every day is mother's day", and boy is she right. Every single day we are deeply involved in all aspects of our childrens lives',  from the their basic care to their emotional needs. Now I have a bigger appreciation for everything they went through to have me and raise me (and sometimes i even feel sorry for myself that they arent around to be the grandmothers that they would want to be)

Even though I dont specifically celebrate the official Mother's Day, im sure glad Yossi's school does.  I always knew that beneath all of the differences and challenges, Yossi's understanding is intact. still, i get excited  all over again each time we experience his ever expanding thoughts. Yossi's teacher (of 3 years) also has faith in him.  I'm so grateful that she has given Yossi a voice. I was teary eyed when Yossi's  showed me his Mother's Day project and my heart absolutely melted when Yossi said "I did this."

I think its safe to say that my child is brilliant, and he knows his mother very well.