I've stopped waiting for life to calm down. i finally realized that life will always be hectic and we'll always be busy with something. its just a matter of what you are busy with.
im happy that this year was not spent in the hospital. to be sure we had plenty of appointments but its a different life. its calmer, a little more predictable with no great emergencies. I'm so grateful for Yossi's health!
his seizures are still here, almost on a daily basis (so he mouths alot) but with the right combination of medication the number of seizures stayed at a steady low. this allowed yossi to grow and develop.
he grew 5 inches in the last year and gained 5+ lbs. he is saying new things and learning new skills. he is walking farther and steadier and constantly makes us laugh with his antics.
this summer was very rough- the extreme heat played with his seizures. fortunately his seizures are a little more predictable and we were able to control them by tweaking his daily meds. we did have one incident where they piled up suddenly one after the other and fortunately yossi recovered the next day.
its been wonderful spending family time on leisure trips and exploration this summer rather than making frantic trips to the hospital with hearts racing and nerves shot. its amazing how each tiny reduction in medication had us holding our breather waiting for it go badly. now i can look back at how much we've been able to reduce his medications.
yossi was as happy as ever to go back to school- i can hardly believe that my baby is in 4th grade! as the weather turns cool ive got to go buy vests and undershirts for the first time ever!- yossi's body temperature has finally regulated now that he's been stable for a while. his immune system is still pretty bad its taking time but he is slowly recovering. we'll always have seizures and we'll always have our doctors in our family but im very fortunate that we've reached this day.
Thank you Hashem for HEALTH!! may this new year bring continued health and healing, love, together, growth and prosperity!
Kesiva Vachasima Tovah
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