Here's another reason that i love my friends so much: ive last posted about a week ago and several people have already told me that they are anxious for more posts! im so lucky to have so many wonderful friends, that are always here for me and always waiting to hear good news!
im sorry that i couldnt write this past week, i was too busy planning this upcoming week's vacation. thats right- a real vacation! just me and dov on our own without yossi. in addition to school we have arranged 4 different people to take shifts with Yossi so that we can have a few days to recharge. thats huge amount of preparation but so worthwhile! i shudder to think about all the prepations that an extended trip would entail. for now i'll just be happy with several days away. im so lucky to have friends that are willing to help with yossi.
this week was also a week of firsts:
-fits of giggles all the time
-getting off the couch to a standing position on his own,
-getting onto all fours unasisted and actually crawling several paces (he's also using this talent to try and figure out how to escape his crib)
Yossi has also continued progress this week in:
one handed walking (freehand and using the wall for support),
navigating stairs
bike riding
picture communication system
the sun is defenitly out this week :)
Today he did pretty good with toileting; using the bathroom almost every time and even telling us verbally once that he needed the bathroom. i wish i could figure out how to get him back on track, since he has started feeling better, this is the one thing that is still lagging behind. i cant wait to get him back into underwear.
Yossi had under 5 seizures per day this week. on thursday night we increased the dose of valium and right away lowered the prednisone a little bit more. BH he seems to be tolerating the medication changes really well this time. im hoping that this week he continues to do well, so we can keep taking steps to get rid of the prednisone forever!
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