perspectives

Yossi continues to be stable and healthy after having  lowered the prednisone twice and replacing it with valium! he is holding steady in the range of 2-7 seizures a day..

from my end: zero seizures is better than a few. but  my friend says that a few is way better than many in a day.
i guess its a matter of perspective. and attitude. we've been on edge for so many months, that im dismayed at any little setback.. it has been the case in the past that any little setback, throws the train completely off the tracks. i dont want to go to that place again. ever. running back and forth to the hospital for months on end, barely making it through the day, and watching Yossi want and struggle with activities he normally performs.

Now Yossi is happy and vibrant and constantly laughing. he is crawling more often on all fours (on his own) and making more progress in steps torwards independant walking. so i guess a few seizures isnt too bad.

still,  we still have a long way to go before we say goodbye to prednisone.  so far we've gone from 30mg to 27.5 mg, to 25mg.  we've got to go super slowly because his seizures lurk just around the corner. its a very delicate balance. we've been down this road before. several times in fact. im just hoping that this time we can make it all the way.

So forgive me if im a bit gun shy but i'll try to keep my hopes up!
Maybe i'll just have to watch this video again and again until im in a better mood!
(Yes, i finally caught Mr. Giggles Giggly-face on camera)