2 weeks seizures freeeeeeeeee! 2 scoops of ice cream for me! we did have less than 5 'maybe seizures' but no defenite ones. in any event 5 in 2 weeks is way better than 200 a day, or even 100.
To make sure that yossi doesnt have seizures when we lower the prednisone, we have to increase another medication- valium. the valium makes him drowsy during waking hours and makes him sleep longer than usual. To my suprise however, the minute we lowered the prednisone, yossi did not stay drowsy by day. instead he is more alert, back to his usual personality. he is starting to talk again and be active and cheerful.
its so nice to have my Yossi back, the one who plays tricks on us and then laughs hysterically! the yossi that is healthy enough to ride home on the bus. YOSSI CAN RIDE HOME ON THE BUS!!! its great for me, i get an extra hour at home instead of having to drive to williamsburg to pick him up every day. luckily, Yossi loves everything about the bus! every day that he rides, he comes home bubbling over with excitement. he waves goodbye to his super sweet driver and to every bus that passes by. I think he likes the bus because he gets to be a normal kid for that hour, riding to school with friends just like everyone else . the sweetest part for me is watching the neighbors' children come off of their own busses and run to greet yossi as he comes off of his. thats my block for you, parents and kids who greet yossi with smiles and open arms, who accept Yossi's differences and yet treat him just like everyone else. no wonder my whole family loves this block. i wouldnt dream of moving :)
No comments:
Post a Comment